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Tuesday, April 5, 2011

Sensory Processing Disorder

Noah has been diagnosed with Sensory Processing Disorder. We have known about his "condition" for over a year now (almost two), but it has taken us quite some time to get accustomed to it (will we ever?) We are still in somewhat of a state of denial, and it's amazing how many people try to throw in their two cents. Like, as soon as it seems we've accepted this diagnosis, someone says, "He's just a boy. He's perfectly normal." And we second guess ourselves. The thing is this: we love our son more than anything. We would do anything for him. And we are not LOOKING for something to be wrong or different with him. But the truth is, something is different with him. Something that, to be quite honest, exhausts us, frustrates us, baffles us. As new parents, we assume that these behaviors are normal, until told otherwise...until other peers are observed and we realize, WOW, his behavior is not normal. Anyway, the main thing I'm feeling is that if there is ANYTHING we can do for him to help him cope, to help him adjust to his environments, etc. etc., LET'S DO IT. Why not try everything under the sun? We've been told that he will soon alienate himself from his peers, from adults, from strangers. His behaviors will go from being cute to being really annoying, and others will not want to be around him. He will have a hard time making friends. He will suffer in school. These thoughts are terrifying to us. But so is the thought that we are "labeling" our child. What do we do? For now, we have him in therapy once a week, and we do home therapy also. But we haven't seen much improvement, or rather, we don't know what kind of improvement to be looking for. We have read books, done research online, talked with friends, caregivers, teachers, etc. And we have prayed. I just want my sweet boy to have the best, and I want to make all the resources available to him that I can. *sigh* What a complicated and emotional issue. Please say a prayer for our Noah bear.